Skip to main content

Zach Update



Friday, June 2, 2006 4:49 PM CDT

Thank you to all the prayer warriors out there, and to all the hordes of lively, hungry teenage boys who boisterously clamor in, ride the bed, eat the chocolate and keep Zach's spirits up.

Reports:
Zach: The surgery went well. The bone is intact and perfect. Hooray! The cultures show that the infection is staph, which is no surprise. We will find out tomorrow if it's a garden variety staph. If so, Z will go home on oral antibiotics. If it's a resistant strain, they will do another surgery and place a PICC line in his arm and he will receive IV antibiotics at home. The line would probably not be able to be placed until Monday, so he'd likely go home Tuesday. We're praying HARD for alternative #1.

Kenny: The labs showed no signs of infection and they have ruled out kidney stones. So, bottom line, they aren't sure what's causing it. The good news is, they are treating it as if it's a topical infection in the penis/urethra, rather than an internal infection in the bladder, so they've put him on antibiotics and a topical antifungal cream. (As a side story, if you've ever tried to give a pill to a cat...triple that and you've got a close picture of what it's like to try to put cream on a 15 year old's owie penis!) Today he says it's much better and that there wasn't any blood in his urine. This is Kenny report, unverified by anyone, since he flushed the toilet...so I'm hoping he's telling it straight, but right now, I think he'd say ANYTHING to get us to leave him the hell alone! He says the pain is better, too. And he didn't fight Grandpa putting on the cream, so we hope we're on the mend. The doc says that it needs some close follow-up, however, even if the antibiotics clear it, because they don't know why it's happening, and while it might be just an odd infection or a fluke, it could also be signs of something serious. He'll see the pediatrician in a week.

Kate: She's hanging in there. Her big dance recital is tomorrow. It's been pretty tough on her. She's been very worried about her brothers, and missing Mom. She was just a wreck on Wednesday. Luckily, my mom got here, and she got to go home to her own house, and that helped hugely, also my mom is great with lots of snuggles and cuddles and came into the house and slept with Kate in the big bed, so that did wonders for her spirits. I think she just needed some emotional filling up, and thankfully, my mom was there to do that job in my absence. I let Kate stay home from school yesterday and stay with me at the hospital. I think that helped, too, and she snuggled some with Zach, too. Although, I have to say, he got progressively crankier as the day wore on. He hadn't eaten since friends brought milkshakes by the evening before and he didn't go into surgery until 4:00...so he went about 20 hours without eating. By about noon, he was arguing with his bed. Sheesh.

He's definitely ready to be home. He's cruising the halls in a wheelchair, trying to see how quickly he can make tight turns, driving nurses crazy and is generally chomping at the bit.

Mom: well, I could be better. I've had a lot of support...Deb, Dee, Alex, Karen, Laura, Mindy, Evy...bringing coffee, food, taking me for walks, checking in, listening. Thanks, guys. Thanks, Huxolls for taking Duke! Thanks to my C-friends, Cathy, Cheri and Claudia keeping the prayers going.

I know there is a bigger emotional storm on the horizon. With all the crisis, I've not had the time or fortitude to even let the reality of Doug's death come to the forefront yet. Once the fallout settles, I know I'll need time to process, to feel, to grieve.

Sleeping okay, eating okay. Many, many flashbacks to when Dave was in the hospital exactly one year ago. Sudden pictures that leave me feeling hollow and empty and surreal. Sounds and smells that bring back the fear in the pit of my stomach. It's been hard for the kids, too. Those memories are right there, so close I can touch them. And it's awful.

Today in Walla Walla, a cleansing rain, rinsing the dust from the air, cutting the heat. It's good. God is good, all the time. We're turning a corner.

Love you all,
Shelley
PS. I wonder how many people out there think I'm either crazy or am making this crap up. This sort of thing doesn't happen to real people does it???? I guess so! For reference, see the shit sandwich entry in the journal history that Kendrie's mom wrote!!!


Comments

Popular posts from this blog

Kyle

Tomorrow is January 2. One of the five happiest days of my life. It's the day Kyle was born. Dave was so excited. All through the pregnancy, Dave was sure this was a girl. He bought this little pink sleeper. He was just sure that Kyle was a girl. Actually, he was sure it was a girl all four times! But if he were to be a boy, his name was to be Kenny or Erik. Kenny or Erik. Erik or Kenny. We went back and forth. Dave said, "Oh, it didn't matter anyway, since Amanda Loree was going to be born." A few days before Kyle was born, we had an ultrasound, because there had been so much confusion on his due date (turned out he was 3.5 weeks overdue!), and we discovered he was a boy! A boy! We were amazed. And suddenly decided to name him Kyle. Don't ask me why or how. It just happened. Dave's brother, Bob, was in town for the weekend. I'd had a lot of contractions on Dave's birthday, he was hoping that Kyle would be born on his birthday, but it didn'

Tumor Board

Tuesday, August 17, 2004 1:13 PM CDT We met with doctors at Harborview yesterday. Dave has a new growth in his right frontal lobe. This new growth is very small, but it was not evident at his MRI in May, and shows on the MRI in July. It's quite scary that it has grown so quickly, and is in a new place. It's also scary that it grew while Dave was on temodar (chemo). The doctors from the tumor board are recommending gamma knife. Gamma knife is high intensity radiation that is very accurate and focused on the tumor growth. There are 201 beams aimed at the tumor. (See the main page for a link to information about gamma knife, you have to scroll to the bottom.) On Thursday, August 19, 2004, Dave will undergo gamma knife at Harborview in Seattle. We are hoping that this will halt the growth of the tumor. He will go into the hospital at 7:00 am and they will place a halo or frame around his head, by screwing it into his skull (ouch! They will give him some IV pain meds). They took x-r

Goodbyes

So I had my first Walla Walla goodbyes. The first was my eye doctor, Dr. Poffenroth. He's taken care of my eyes for 25 years. He's more than just an eye doctor.  He's a caring person and a friend. As I left my last appointment, he handed me a card with a referral to a friend of his who practices in Port Angeles. I looked at the card. And realized...I won't see him again. I've been living in a bit of denial. I know.  Big surprise. With all the excitement and chaos of moving, And all the stress of living in limbo, I somehow missed that I'd be leaving some things some people behind. I know I'll be back often. To see my kids and the new grandbaby, friends and family. This fact allowed me to forget... there are some I won't see. Even though we promise to keep in touch, Life has a way of getting busy. Good intentions and all that. I  have written many times about Walla Walla. It's a magical place. Safe, nurturing. I never thou