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Showing posts from April, 2005

Pictures Posted

Thursday, April 28, 2005 2:50 PM CDT

http://pg.photos.yahoo.com/ph/shibelle007/my_photos

The above link will take you to my photos at yahoo. 192 new pictures to look at!

The albums:

Choir Trip Pioneer: Kenny's 8th grade choir trip
Amy's Birthday/Puppies: Amy Ullmann's 9th birthday, pictures in Kelso, pictures of Sophie's puppies, and a few baseball pictures.
Spud's Birthday: We celebrated at MomJudy & DadBob's house. Pictures of Spud, Caleb, Annalee, and of course, the ultimately photogenic combo of Missy and Zach.
Music: Missy Peterson, Shane & Tracy Longmire, Jeffrey Townsend, & Skip Pritchard in their healing ministry.

I hope you have fun seeing them.

For chemo updates, see journal history. Dave is at work today! YAHOO!

Music

Wednesday, April 27, 2005 11:11 PM CDT

Okay.
Answered prayer #3: No side effects. Dave is feeling good. A bit tired, but pretty good.

No, right now he's feeling fabulous. His face is lit like a Christmas tree. I haven't seen him glow like this in quite a while.

It's music. Music and good friends. Missy Peterson had the idea...let's get together and sing. So she came, brought Shane & Tracy Longmire, Jeffery Townsend, & Skip Pritchard. It was wonderful. Healing. Powerful.

Dave is aglow. Thank you friends. As Skip prayed, "We know that whenever two or more are gathered, You are there." How blessed we are.

How blessed we are.

Infusion Part II

Wednesday, April 27, 2005 4:20 PM CDT

2 pm (see journal history for previous entries today)

CPT-11 is in. Dave's feeling fine, a little wobbly, heart rate still low, but overall okay.

Alex came to see us. She always makes me laugh. Good thing she has such an understanding boss!

Now we rest. And pray. And hope. And love. And believe.

Thanks for being with us!

PS. Terri...how's this for COUGAR???

Infusion Time

Wednesday, April 27, 2005 1:11 PM CDT

Anti-nausea meds in, avastin in, cpt-11 soon to come. Dave's doing well. His heart rate is only 40, tho, so they're watching that. Doc thinks it's withdrawal from the thalidomide. Dave's dad came by to sit with Dave while I run home to get the music. Need to listen to Matthew West "Happy" while at the Cancer Center!

Answered prayer #1 (well, #1001 really, but for today..) The insurance will pay!!! Hooray...and if you know anyone who works for Premera Blue Cross, hug them!

Answered prayer #2: The nurse, Katie, was able to easily find a vein. We'll be doing a port soon.

Thanks for everything, ya'll. KOKO!
Love, Shelley

Plan in Place

Tuesday, April 26, 2005 6:45 PM CDT

Met with Dr. Sacks. After much research and even more prayer the CPT-11 & Avastin will begin tomorrow. It's a 4-5 hour infusion process.

Please, please pray.

Pray that this treatment will work, that it will halt the growth of the tumor, destroy the cancerous cells, and spare the healthy cells. Pray that Dave will feel good and remain strong and that his blood counts remain steady. This combo should have fairly minimal side effects. Pray that our insurance will agree to cover the $4000 per week it will cost. While you're at it, we could also use a good vein :-) !

Thank you for your diligence, your dedication, your love. We see the love of our Savior shining in your faces, working through your hands and your prayers. Our God is an amazing God. "Even when my hands are heavy, I will lift them up to You!" We lift our hands, our voices and sing His praise. His grace is sufficient, He is our haven, our hiding place. Tonight we rest, tonig…

Even When

Tuesday, April 26, 2005 1:57 PM CDT

Artist: Seven Places
Album: Hear Us Say Jesus
Song: Even When

This week, I prayed, one time
My phone, it rang, I put You on the other line
And now my thoughts they drift around
My knees remain unacquainted with the ground
Unless my faith is put to the test and I am forced to bow
Although I'm in this flesh it doesn't mean You shouldn't have the best
from me, from me

[Chorus:]
Even when my eyes are dry
even when my soul is tired
even when my hands are heavy, I will lift them up to You
It's not about how I feel, oh Lord I am here for You
I exist for you

I close my eyes but all I see
Is a background of black, bouncy squiggly lines
And this week's mistakes coming back to mind but
I will lift my voice and make a joyful sound
Forget about me, I only get me down
Although I cannot see it doesn't mean I shouldn't sing to You, to You

[Chorus]

You've given me Your life and have held mine together yet I find
Excuses to slouch in my pew
But when glory divin…

Decisions to Make

Saturday, April 23, 2005 4:14 PM CDT

Babe Ruth Try Outs Today!

Zach was great. It was so fun to see. He listened to his mother and swung his new bat LEFT-HANDED again! Worked like a charm. He hit well, and smashed it a few times. Fielding looked great as well. Very fun for Dave to be there.

Kenny had track this morning. Working on the long jump. Got into the car and said, "Whew, I'm outta shape." Funny kid! We were tired, he was in a choir competition in Pasco yesterday, and it was a long night. But the choir did very well and sounded beautiful.

Heard from Duke this morning. Early. Talked to Dr. Friedman early today. He was in early on a Saturday, he's obviously very dedicated and I know he sees half of the brain tumor cases in the country cross his desk. But, man, it was a disappointing phone call. I had talked to Dr F. in Feb after Dave's gamma knife. Said, "We can't help until he shows progression." Saw Dr. Prados, he got Dave on tamoxifen/thalidomid…

This Is Your Life

Wednesday, April 20, 2005 11:48 AM CDT

When I hear this song, I think of Dave. And when I hear that question, "are you who you want to be?" I know that Dave can say YES!

This Is Your Life by Switchfoot

Yesterday is a wrinkle on your forehead
Yesterday is a promise that you've broken
Don't close your eyes, don't close your eyes
This is your life and today is all you've got now
Yeah, and today is all you'll ever have
Don't close your eyes
Don't close your eyes

This is your life, are you who you want to be
This is your life, are you who you want to be
This is your life, is it everything you dreamed that it would be
When the world was younger and you had everything to lose

Yesterday is a kid in the corner
Yesterday is dead and over

This is your life, are you who you want to be
Yhis is your life, are you who you want to be
This is your life, is it everything you dreamed that it would be
When the world was younger and you had everything to lose

Don't close your eyes
Don…

Disney Pics

Tuesday, April 12, 2005 7:28 PM CDT

New Disney pictures on the yahoo site. Go visit the address above, and click on the DISNEY HAROLDSON-STYLE album. Way cool pics, thanks Evy & Erik. Trying to find a way to upload the DVD that Mindy made. It has pics, video and music....wonderful.

Scan Results

Thursday, April 7, 2005 2:04 PM CDT

We met with Dr. Sacks today and looked at the scans. The news is not good. The tumor is growing, and pretty significantly. It has crossed the corpus callosum and there are new tumor sites now in the right hemisphere.

This precludes doing any more surgery. The will not do surgery if both hemispheres are involved.

No more gamma knife, either.

We have tried almost all chemos that have any kind of track record at all. This leaves experimental treatments/clinical trials.

Scans went out to Duke today.

Please pray, we are running out of options.

It's miracle time.