Skip to main content

Another One of Those Days

Monday, January 23, 2006 11:25 PM CST

Warning: not for the faint of heart or the worry-warts.

I'm having another of those days.
The days when I not only can't fix it,
but I can't stand it, either.

Another part of the cycle.
Another low on this roller coaster.

Kevin is faltering.
Lou can't walk.
Fred is dying.
Hadley has no trial to enter.
Hailee's been in the hospital.

I write to these people.
I love these people.
People I've never seen,
never touched,
who are still my friends.

Sometimes my only friends.
If it weren't for Lisa,
dropping by,
the gift of another adult voice
in my house,
someone to just hear
the small, everyday stories,
I think I'd come unglued.
Amid the busy, rowdy noise
of kids and their friends,
it's so lonely here.

I try to pray,
for those still in the fight,
I try to pray
for my children
I try to pray
for what's left of my family,
but on nights like tonight,
my prayers feel useless,
empty,
falling through darkness
to land
unheard
unseen
unfelt.

And I know, I realize,
each time I write to these friends,
that I am living their worst fear.
I am their nightmare.
I live in the place they never want to go.

A barren place,
a place where
the loneliness is numbing
and the pain is searing,
a place of utter solitude,
where I am completely alone
where there is no Dave
and I can't feel God
and I don't feel love.

If you can't fix it,
and you can't stand it,
then you've just got to wait it out,
ride it through,
keep moving,
keep breathing,
and wait
to be able to see
the love that never fails.

I know it's there.

Shelley

PS. Update at 12:35 am Pacific time....
of course the love is there...
it came knocking on my door,
in the form of Dee,
friend beyond measure,
bringing coffee at midnight,
listening,
accepting,
hearing,
caring,
understanding,
Dee, you are wise
warm
wonderful.
Claudia, thanks for nudging her!



Comments

Popular posts from this blog

Kyle

Tomorrow is January 2. One of the five happiest days of my life. It's the day Kyle was born. Dave was so excited. All through the pregnancy, Dave was sure this was a girl. He bought this little pink sleeper. He was just sure that Kyle was a girl. Actually, he was sure it was a girl all four times! But if he were to be a boy, his name was to be Kenny or Erik. Kenny or Erik. Erik or Kenny. We went back and forth. Dave said, "Oh, it didn't matter anyway, since Amanda Loree was going to be born." A few days before Kyle was born, we had an ultrasound, because there had been so much confusion on his due date (turned out he was 3.5 weeks overdue!), and we discovered he was a boy! A boy! We were amazed. And suddenly decided to name him Kyle. Don't ask me why or how. It just happened. Dave's brother, Bob, was in town for the weekend. I'd had a lot of contractions on Dave's birthday, he was hoping that Kyle would be born on his birthday, but it didn...

Tumor Board

Tuesday, August 17, 2004 1:13 PM CDT We met with doctors at Harborview yesterday. Dave has a new growth in his right frontal lobe. This new growth is very small, but it was not evident at his MRI in May, and shows on the MRI in July. It's quite scary that it has grown so quickly, and is in a new place. It's also scary that it grew while Dave was on temodar (chemo). The doctors from the tumor board are recommending gamma knife. Gamma knife is high intensity radiation that is very accurate and focused on the tumor growth. There are 201 beams aimed at the tumor. (See the main page for a link to information about gamma knife, you have to scroll to the bottom.) On Thursday, August 19, 2004, Dave will undergo gamma knife at Harborview in Seattle. We are hoping that this will halt the growth of the tumor. He will go into the hospital at 7:00 am and they will place a halo or frame around his head, by screwing it into his skull (ouch! They will give him some IV pain meds). They took x-r...

Catching Up

Hello Constant Reader, Friend, Ally, Supporter, Prayer Warrior, Brother, Sister... I'm not sure what I would do without the support I get through this blog. I might go insane. Wait...I might be there already. In fact so much so that I asked my children tonight what they thought of moving to the Seattle area. They all looked at me like I had three heads. I'm not thinking of doing anything drastic, but I look around and realize that in many ways, I'm terribly unhappy and lonely. So like any good 12-stepper, I look for a quick fix...geographical cure. Wouldn't it be nice to start over? Just ditch everything and go somewhere new and fresh and clean? Not really, I guess. For instance, we would have missed this one: Zach says, "Mom, I need lunch money." (This, as I'm sweetly encouraging Kenny for the 15th time to get in the shower, as I'm gently reminding Kate for the 10th time to brush her teeth, as I'm giving positive affirmations to them all...