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Back from Disney!

Wednesday, March 9, 2005 10:56 PM CST

Back from Disneyland! What a wonderful, wonderful time. Peter, Cheryl, Austen, Peyton & Ethan, we can't thank you enough for everything. What an amazing gift!

Denise, Darren, Jake, Amy, Luke
Bob, Mindy, Annalee, Caleb
Erik, Evy, Canute, Sonja

Thanks for joining us and making it such a special time!

I'll post more, including pics soon. Suffice it to say, it was the BEST!

San Francisco was also great. Dr. Prados is amazing. He first read the MRI for us, and although it was difficult to do because we had to keep switching back and forth between cd's to see both images and couldn't do a side-by-side comparison, he says that Dave's tumor looks better, it looks like it's beginning to shrink. He said that there are some people who have really great response to tamoxifen, and perhaps Dave will be one of them. (WE ALSO KNOW THAT ALL OF THAT PRAYER POWER HAD MUCH TO DO WITH THAT TUMOR MAKING A RETREAT!) He suggested adding thalidomide to the tamoxifen and increasing the dose of tamoxifen. He also outlined for us some other next steps he would take in the event that the tamoxifen stops working. The only downer was that Dave is not eligible for the Poly ICLC trial because he's had too many procedures. Dr. Prados did let us know of some other trials that Dave would be eliglible for, but those are single-agent trials, so for now, and as long as we can, we'll stay with the tamoxifen and add thalidomide.

If you'd like to read more about any of the treatments I talk about, I'd recommend www.virtualtrials.com It's a great website with lots of information.

Gotta get to bed now, but wanted you to know that we're home with answered prayers in hand (or in Dave's head at any rate!)

Love you all,
Shelley

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