Skip to main content

KOKO

Sunday, July 31, 2005 0:22 AM CDT

Not much to update. Dave had some nausea today, and was very tired this morning. Actually, all day. He was pretty wobbly this morning. Up and down. Yesterday, he navigated stairs really well. Today, no go. We're learning to roll with the punches.

Starting to take a toll on the kids. Everyone's pretty emotionally fragile right now, trying to adjust to the reality of what life is like in this moment, trying to keep hope alive, trying to find those peaceful moments in the day. It's hard. Scary for them to see Dad, who's always been big and strong and their source of safety and protection, be the one who needs help.

Deb took the kids to the pool today, a much needed break for them...thanks, hon. Got Mark's cd in the mail. Dave was so happy! Listening to "Driving the Eights" all day.

Dave's dad has had some dizziness, so pray for him, too, k?

I'm sure there's more, but I'm drawing a blank. Love you all, Shelley

Comments

Post a Comment

Popular posts from this blog

Kyle

Tomorrow is January 2. One of the five happiest days of my life. It's the day Kyle was born. Dave was so excited. All through the pregnancy, Dave was sure this was a girl. He bought this little pink sleeper. He was just sure that Kyle was a girl. Actually, he was sure it was a girl all four times! But if he were to be a boy, his name was to be Kenny or Erik. Kenny or Erik. Erik or Kenny. We went back and forth. Dave said, "Oh, it didn't matter anyway, since Amanda Loree was going to be born." A few days before Kyle was born, we had an ultrasound, because there had been so much confusion on his due date (turned out he was 3.5 weeks overdue!), and we discovered he was a boy! A boy! We were amazed. And suddenly decided to name him Kyle. Don't ask me why or how. It just happened. Dave's brother, Bob, was in town for the weekend. I'd had a lot of contractions on Dave's birthday, he was hoping that Kyle would be born on his birthday, but it didn...
52 comments
Read more

Tumor Board

Tuesday, August 17, 2004 1:13 PM CDT We met with doctors at Harborview yesterday. Dave has a new growth in his right frontal lobe. This new growth is very small, but it was not evident at his MRI in May, and shows on the MRI in July. It's quite scary that it has grown so quickly, and is in a new place. It's also scary that it grew while Dave was on temodar (chemo). The doctors from the tumor board are recommending gamma knife. Gamma knife is high intensity radiation that is very accurate and focused on the tumor growth. There are 201 beams aimed at the tumor. (See the main page for a link to information about gamma knife, you have to scroll to the bottom.) On Thursday, August 19, 2004, Dave will undergo gamma knife at Harborview in Seattle. We are hoping that this will halt the growth of the tumor. He will go into the hospital at 7:00 am and they will place a halo or frame around his head, by screwing it into his skull (ouch! They will give him some IV pain meds). They took x-r...
27 comments
Read more

Catching Up

Hello Constant Reader, Friend, Ally, Supporter, Prayer Warrior, Brother, Sister... I'm not sure what I would do without the support I get through this blog. I might go insane. Wait...I might be there already. In fact so much so that I asked my children tonight what they thought of moving to the Seattle area. They all looked at me like I had three heads. I'm not thinking of doing anything drastic, but I look around and realize that in many ways, I'm terribly unhappy and lonely. So like any good 12-stepper, I look for a quick fix...geographical cure. Wouldn't it be nice to start over? Just ditch everything and go somewhere new and fresh and clean? Not really, I guess. For instance, we would have missed this one: Zach says, "Mom, I need lunch money." (This, as I'm sweetly encouraging Kenny for the 15th time to get in the shower, as I'm gently reminding Kate for the 10th time to brush her teeth, as I'm giving positive affirmations to them all...
15 comments
Read more